My long awaiting for my #MSK appointment

Msk appointment update

I am still awaiting my initial appointment with the msk team which I was referred for back in November 2023.

Since then I changed GPS as the one I saw and whom was to make the referral failed to do so. For after waiting for an appointment and contacting them regarding they informed me that the referral had never been made. The gp surgery said it was a administrative error and so another referral was made, but on further investigation I learnt that the gp had ask for a routine investigation into my walking issues and therefore I was put on the long waiting time, even though my leg was severely injured with many tendons torn and much swelling around my knee. All which was expressed to the gp.

I feeling that she would never help me back in November 2023, so decided I would pay privately for a mri scan of my knee, and that is how I learnt of the tendon tears , which I would have never of had evidence of otherwise. The scan was done on 12 January 2024 and the report described the severity of the tears.

By this time I had changed my gp and asked for the report to be sent to them . But twists and turns of things resulted in my registration not being accepted. I therefore sought another gp surgery and they informed me that my files since 2020 were absent so all records of my scan and leg issues were gone.

The new gp surgery said they had a msk physiotherapist in-house I could see so I did, on the 28 March 2024. but they examined me and said they were referred me to the msk team. This they did and more time past , then the msk team said they needed more information and so I needed to visit the physiotherapist at my gp surgery again for more examinations . My hip flexor on both sides is not happening and so he sent the information to them again. Time past and I received a couple of letters saying how they were going to send me an appointment. One on 2 May 2024

And another on 9 May 2024

Note it has got hospital number but no #NHS

but still none appointment has been forthcoming.

Today being 10July 2024

Still have not heard anything, today being 16 August 2024

30 October 2024

Update on MSK appointment

Finally I may get help.

Last week I decided to try and use the services to get help regarding appropriate housing. In order to do so I need help from MSK with my legs ,either to help improve my climbing of stairs or being able to find somewhere with a lift.

I went age concern who directed me to Brighton housing trust, who in turn directed me to citizens advice. I told them of my physical difficulties climbing stairs and also that my safety was at stake due to other people having keys and letting themselves in whilst I am out and also trying to enter whilst I sleep each night . Each I told of my situation. Finally at citizens advice I was 7th in the queue and told there were no more spaces that day and to come back Thursday. I decided to go onto victim support and ask for help. When I reached the building stated on the net I found no one there. I called their number and got no answer and so I called their out of hours number and again no answer. I therefore left all my details and predicament.

I wrote all this out in an email to a lawyer and then my phone rang. It was victim support. I told them all and they said to call back the next day. This I did only to not get an answer. I called 3 times leaving a message with my details and that a worker had spoken to me the day previously.

Again I wrote another email to the lawyer and again once written someone called from victim support. They said that there was no record of me calling the day before. I told her everything again and she asked what I wanted from them. I said how a lawyer had told me that they would help me with security issues but they said no just a little alarm and door lock. I told her that they don’t work as they just wait until no one is in and then come in my home and turn them off.

All services asked had I reported to police and I told them no as I didn’t have proof of who was doing it only that they were.

They pushed that I went to police.

But in truth I was considering it but seeing as my calling victim support the day prior got wiped from their records I only expected the same with police. I have in the past handed over evidence I had which got wiped and a campaign was built around me to try make me appear crazy.

I also went to the local library to use a computer as all my devices are rendered useless and I wanted to transfer some files. But when I asked and gave my name they said I am not on their system. But I am registered, so I see my details seem to be removed from most places. Like my medical files are.

I therefore decided on Friday to book an appointment with the physiotherapist at the ms centre to see if she could help me understand my climbing issues and maybe find a solution. She booked me in for next week and low and behold this Monday I received a text from hove poly clinic saying they have an appointment for me to see a physiotherapist for my legs , the following week. So I will attend both and see what they have to say.

update 12 November 2024

MSK appointment

Today I attended my MSK appointment that I waited one year for.

He said that the referral was made in April, and in a sense it was for even though I initially went to the GP I had last November who said she would refer me, I went on to find when chasing the appointment up that none had ever been made. So it was requested again by her. Then I knowing that this was not what I needed decided to book for a private mri scan of my knee; for she said she wouldn’t.

The scan was done in January this year and showed severe tearing of the tendons around my knee amongst other things. Therefore I addressed it accordingly with resting my legs, elevated in bed until the pain had passed and I was able to bare weight on it. I remained mindful of the fact that tendons were torn and so didn’t push myself as usual.

The scan meanwhile seems to have been lost in the process. For I tried to get it sent to another gp surgery by calling the provider on the day the scan was done, telling them that I was no longer with the GP and had changed. They said because I didn’t have a named doctor that they couldn’t send by email but would send in the post. But after chasing things up the surgery I had registered with said I couldn’t go to them as I wasn’t in their catchment area.

I therefore selected another doctor surgery. But on chasing that one up I discovered that the scan results were not sent . I also learnt that my whole nhs medical was absent from 2020, which was the time I began my registration with the doctor who examined my knee. There was no concern about my file missing but I was required to prove I had been receiving thyroxine as prescribed.

Meanwhile I fought to get the report for the mri scan to see and show my chiropractor. And after much difficulty I managed to get it in an email. For yes I was given an access code for the website to view but it wasn’t working for me. The report is in this blog above . The scan images I wasn’t able to view but I did manage to get them to send a cd of in the post .

My chiropractor said that it was no surprise how I wasn’t able to walk when she viewed the scan and report.

Meanwhile the new doctor’s surgery I registered with said that they had a MSK working at their practice; a physiotherapist. So no appointment forthcoming I booked to see him. He gave me an exercise to do but I found when I tried it at a later date I couldn’t do it. I informed him and he said he would refer me to MSK , that was April.

Nothing forthcoming, so two weeks ago I booked an appointment with the physiotherapist at the MS centre I attend for oxygen therapy. After which I received a text from nhs saying I had an appointment booked for today to see a physiotherapist.

I saw the physiotherapist at the ms centre last Friday and showed her the report from my mri scan done in January and she said it was bad , like someone needing a knee surgery.

She gave me leg raising exercises to do along with balancing but after doing the leg raising exercises Friday evening I experienced spasms and weakness in my hip. So stopped but will share this feedback with her when I see her again.

Today therefore I shared all this with the physiotherapist at the nhs service and he gave me a few exercises to do. But no follow up appointment just a card with an open appointment for one year, to book if issues get worse.

So I am hoping with the exercises given I will improve the strength in my legs to be better able to climb my stairs at home.

Currently I struggle with them and although with the oxygen therapy a lot of my disabilities have improved, the strength in my legs haven’t with climbing stairs or inclines.